CPN Breakthrough was created by the Essis family because their daughter, Allegra, was diagnosed with Clericuzio Type Poikiloderma with Neutropenia at the age of two. It is a rare genetic disorder that affects her immune system and skin. She is one of fifty known cases in the world. Because of how extremely rare the disease is, the Essis' learned that little attention and research are specifically directed toward CPN. They decided to create this Nonprofit Organization with a mission to spread awareness and to raise funds to support research for this rare genetic disease.
The continuous pursuit of treatment advancements and quality of life improvements for CPN Patients.
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